Making Waves..Challenging the system!

Find my Fatty Liver Disease Support group on Facebook here: https://www.facebook.com/groups/fattyliversupport/

 

In June 2012 my daughter is fighting back against her illness..She is volunteering at the Children”s Museum, she is planning to go to university in New York. She is auditioning for a Musical in my city and she is thriving! I love her fighting spirit and I am so glad to see it grow!

My 19 year old son is heading into the next stage of his life by moving to Halifax to attend Dalhousie university…I will miss him terribly but I am very proud and hope that this expands his mind and focusses his life!

I have been going through an evolution and my blog focus is changing, yes I am getting healthy. The first thing I needed to do was address my emotional , financial and mental blocks that were stopping my own success.

With the help of my personal holistic coach I have made great strides and I am blogging about the discoveries along this journey. Now its time to resolve the junk food addiction and other self defeating behaviours in my life!

I hope you enjoy my journey as the path changes just like life always does!

My 13 year old daughter has been wheelchair bound since September 2009, this is the latest in 2 years of undiagnosed health issues that have plagued her. 2 years ago she came down with a bad case of pneumonia…started to recover and then was hit with another 3 months of mono….she was struggling with a lot of pain and exhaustion , occasional fainting and dizziness and in december 2008 they diagnosed her with fatty liver disease. February 2009 she started her first period and it ran constantly until August 2009. No reasons found for that either… back to school in september 2009 and week 2 she is hit with extreme dizziness, i mean bouncing off walls no ability to balance herself EVER. She was looked at by ear, nose throat specialists, neurologists, and a special pediactric team at sick kids…she spent a week in december being looked at by as many doctors as possible at sick kids and they have NO idea what is wrong with her. All tests come back clean and her body is not providing any traditional clues.

All through this 4 year period i have been so emotional, fighting doctors and systems that cannot help my child. I know now I have to start looking outside the traditional medicine sources and look to alternative medicine for answers.

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17 thoughts on “Making Waves..Challenging the system!

  1. Michelle,

    I am certainly not a doctor, but I have been down the “we don’t know what’s wrong with you” road. My suggestion is to just keep pushing until someone figures it out. Maybe she has some kind of deficiency, like B-12? It’s just a thought and certainly not an attempt to diagnose her, but there are so many different things that can go wrong with the human body, and I just know there is a doctor out there who can help her. Just keep trying, and I will keep praying for her!

    Shannon

  2. Thanks Shannon, yes I am not giving up, I do have her on the best 5 star vitamins our there via usana and I will be getting her to a metabolist as soon as I can save 400.00 for 2 appointments. It time to allow the alternative world of medicine a shot at this.

    Hugs!

  3. I battle with weight due to high steroid use to control my lung damage and severe asthma, it’s a hard slog to do what I can when things are fairly stable and to know my limitations when they are not. Getting a good and through diagnosis for your daughter is important, but so too is a strong look at everything that she does, and interacts with, chemicals, food, and what is going into it. I have a passion for cooking and back to basics -from-scratch cooking does wonders for energy levels, positive, clear thinking, weight control and a myriad of other things. Stay strong and look at tackling things one day at a time… me, I’m not on a diet, I am just healthy eating for one solitary day … today 🙂 I accept that some days will be better than others, but also that the long term goal is well worth working towards. Good luck in the journey… I look forward to popping in and seeing your progress.

  4. HI – Can you eMail me so that I an tell you about a lady who has a daughter who had somewhat similar issues with dizzyness and fainting after starting her period. Maybe she has some insight to offer you. marla AT lhmetropolis dot com

  5. I battle with weight due to high steroid use to control my lung damage and severe asthma, it’s a hard slog to do what I can when things are fairly stable and to know my limitations when they are not. Getting a good and through diagnosis for your daughter is important, but so too is a strong look at everything that she does, and interacts with, chemicals, food, and what is going into it. I have a passion for cooking and back to basics -from-scratch cooking does wonders for energy levels, positive, clear thinking, weight control and a myriad of other things. Stay strong and look at tackling things one day at a time… me, I’m not on a diet, I am just healthy eating for one solitary day … today I accept that some days will be better than others, but also that the long term goal is well worth working towards. Good luck in the journey… I look forward to popping in and seeing your progress.
    +1

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  9. You wrote that you were “fighting doctors and systems.” I’ve been doing the same thing, since 1992; and, I was just diagnosed in September 2010. In my experience, I found that doctors don’t know enough about liver disease, nor are they up-to-speed on the latest research. I cannot count the number of doctors, whom I asked about certain symptoms, who did not know what to tell me. My mission is to educate, not only patients and their families, but to educate physicians, as well. NAFLD and NASH are considered epidemics by many experts. Can we afford to ignore this public health issue,or to simply say to a patient, “You need to eat properly and exercise?”

    My blog uses scientific studies to get doctors’ attention. I am being followed at Virginia Commonwealth University Medical Center and my blog is being recommended to other liver patients. We need to get serious.

  10. I discovered your blog site on google and check a few of your early posts. Continue to keep up the very good operate. I just additional up your RSS feed to my MSN News Reader. Seeking forward to reading more from you later on!…

  11. I think that everything posted made a lot of sense. But, what about this? suppose you were to create a killer headline? I am not saying your content isn’t solid., however suppose you added a post title that grabbed folk’s attention? I mean About my journey! Behindhersmile's Blog is kinda plain. You ought to glance at Yahoo’s front page and note how they create article titles to get viewers to click. You might add a related video or a pic or two to get people excited about everything’ve got to say. Just my opinion, it would bring your blog a little bit more interesting.

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  13. Hi! My name is Sue, and I’m from SlimKicker, a fitness/diet app and website. I came across your blog a few days ago and it captured my interest!

    I’m contacting you b/c we’re about to release a fitness tracker (similar to FitBit) early next year, and are looking for bloggers who would be interested in getting 1 for free to review when it’s out (negative or positive).

    Would you be interested in doing this? You can email me at: sue (at) slimkicker.com with ‘Review’ in the email heading if you are.

    Just to let you know, our website SlimKicker basically turns your fitness/diet goals into a level up game. The tracker will work with the website, and allow people to track calories burned and number of steps they walk automatically. The more they exercise, the more points they rack up! That’s basically how it will work.

    Anyway, hope to hear back either way…

    – Sue
    P.S. You can choose not to approve this comment as this is more of a private message 🙂

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