The Challenge of running a support group, restoring my passion

I left the Fatty Liver Disease Support Group I created 6 years ago on Monday after 2 senior administrators left and deleted me from their Facebook. I have known both for 3 or more years and i was friends with their family as well. I was told the drama in the group was my fault for not standing up for them clearly. That I am too lenient and I am too often allowing people to come to the right answers for themselves once they have been advised on things like not using supplements. That I am the reason for the dysfunction that happens in there

I want to be clear that I understand their viewpoint. When you are on the edge waiting for a transplant or you have had one there is a desperate need to demand that everyone else NEVER get to their stage of this disease. I agree completely with this, but my confidence has come from the fact that I am unaware of a single member who came in to the group with early stage fatty liver who has actually gotten worse with the advice given in here about eating natural foods and stopping the processed foods as much as possible. You are looking for a ratio of 90% natural and 10% processed.

I did a lot of soul searching on Monday and cried a ton of tears. I was blamed for drama on the weekend that i was not a part of, i did not witness but that i received 10 emails from angry members about how things happened with deletions and how it was handled.

The issue on the weekend was actually about a celebrity who is extremely controversial that some members wanted to see as a spokesperson and other members were dead set against him.

This had NOTHING to do with the disease and the group at the end of the day. Having someone famous talk about the disease would be helpful but they should be a little less offensive to a large portion of population.

I came to a decision that i would stop running the group if i was truly damaging it by being to kind. I even started accepting that after 6 years pouring my heart and soul into this group that maybe it was time to back away.

I received a large number of emails of support from within the group Monday and I am forever thankful to those that took the time to check in on me.

Tuesday morning I believe God intervened.

1.A local city politician asked to meet with me and have me help him because he has just been diagnosed with fatty liver disease. He respects this is a business for me and wants to pay me to teach his family how to read labels, how to determine what is a gmo veggie and which are not. How to start a small garden and how to conveniently start making meals from scratch.

Once i spoke to him i was energized with my passion for this disease and helping people again. The negative messaging about whether i am doing a good job or not seemed less important.

2. In the afternoon I received a tweet asking me what i wanted to ask for funding for from a group that helps create campaigns for crowd sourcing. I told them about my visions for raising awareness on fatty liver and they see it as a very worthwhile cause and they will help me get this going.

I rejoined my group on Tuesday I was clearly receiving messages from the universe that told me this is too important to back away from.

On Wednesday I was asked to speak at a women in progress lunch on avoiding fatty liver disease at the end of April and I will also be on a talk radio show in Toronto talking about fatty liver as well.

So while i am still quite hurt by the events of this, i lost a large number of friends because i try to look at all sides of a story before i make a decision. Each one who left and deleted me thought i was supporting the other side, when in fact i saw that they all had a point.

If you have gotten worse while you are in my group please let me know. If this is a common event I will reconsider my position again. I want to help not hurt people.

Please be kind to each other and please be even kinder to your liver

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One thought on “The Challenge of running a support group, restoring my passion

  1. Hi Michelle –

    I had no clue what was going on……now I see. I had already deleted notifications from the group because it was way too many notifications for me. I didn’t know what was going on and it all sounded like “high school bullshit” to me which I want no part of. I can’t handle a lot of crap like that makes me more depressed and stressed. You did nothing wrong as far as I can see from all you wrote. Nothing. Crazy shit all that. Each to his own…..nothing to do with you….I left the group on Monday, also, I think…..already not getting notifications…I figured opt out, certainly not because of you. You did and are doing a good work with good intentions. You have a good heart, that is obvious and should not be attacked for anything….dumb…..celebrities always bring awareness to diseases…..whether we like them or not…they get it out there. Anyway, I just wanted to let you know I had not clue what was going on as I had separated myself….saw a feed Priscilla put out, a vague feed, I said high school bullshit, and didn’t even know what it was about. Don’t need to feel stressed or like it is a job for me to be in a group where I went for info. I am very glad for you in all that is coming your way, truly a blessing you greatly needed. I enjoy your posts I get from your own page….and I see a real person in you, no bullshit and enjoy counting you as one of my friends, along with some others that I have learned to know through your group. Keep up your drive and intent, girl. You are doing just great.

    Best to you each and every day, Sandy Fritz

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