Austin’s Story – 14 year old with Fatty Liver Disease – Guest Post Cat Case

My Sons Journey to Diagnosis of Liver Disease

By C. Case©

At age 14 my son was diagnosed with Liver Disease. From the time he was born up until this diagnoses, I just knew something was very wrong with my son. He was born weighing 7 lbs 1. oz  after 8 weeks old his weight tripled and he was constantly hungry, and either had constipation or diarrhea. By age 3 he weighed 70 lbs. By age 6 he lost the weight as he also was diagnosed with ADHD and was on medication.

As an infant and toddler he ate fast and so much he threw up everything that just went in him, and I mean projectile vomiting. He also had digestive problems we went through so many different diagnosis it was spinning my head.  We went from formula allergies to wheat and lactose intolerance. My son had severe gastric reflux and he does have burn scars on his throat from it. My son started to get severe diarrhea, where I took him to the emergency room and they kept telling me it was just the stomach flu. I was like okay and went with the doctors order, but it just continued on.

My son started gaining back that weight even being on the medication for ADHD at age 8  He has had a gastroenterologist that he has been seeing since an infant on and off. It has been about 3 years since he has been back to see him as he ruled my sons problem to a wheat sensitivity, lactose intolerance and severe IBS. He has had a colonoscopy and endoscope and age 9. I was getting concerned as my son has put on a great amount of weight by age 11, he is now 14 and is 5’8 and weighs over 200 lbs. At first I though maybe diabetes since that runs in both sides of our family, but his sugar lever was elevated but not that much, then I am thinking he has an eating disorder, that was not it either, then I am thinking heart issue possibly? His heart is fine as well.

My son in the past three years has missed so much school from either vomiting uncontrollably to a severe case of diarrhea or constipation and cramps. He put on over 80 lbs since this time last year. He also has migraines associated with the above mentioned . He still has episodes of vomiting and having diarrhea or severe constipation and this year he was complaining about cramps and pains under his rib cage on his right side. If he ran in P.E. He could not go far as the pain and cramps became unbearable.  His disposition was always irritable, and just plain mean when he was having flare ups.

I took my son to the doctor last month for a check up as he was having bad migraines, and diarrhea, the doctor run a blood panel on him and his liver enzymes came back elevated, we waited to 2 weeks to go back and have it redone and it came back elevated ever more. She sent him for an ultrasound just last week and within 45 minutes, my doctors office calls and tells me the news that he has Liver Disease as in a NAFL and to lower his calorie intake and certain carbohydrates and for him to get out an exercise if possible and to stay away from certain foods. His Cholesterol is also high its at 245. Apparently his liver is not breaking down any of the fats in his system for some reason and is just sitting there,. I am surprised that his PCP did recommend him to see his gastroenterolgist or a hepatologist. So I will contact his Gastrenetologist for further assessments on the issue.

So for now my son is on a low fat, low carbohydrate diet, he is drinking a lot of water and is off soft drinks and he is making good choices in school for lunches.


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2 thoughts on “Austin’s Story – 14 year old with Fatty Liver Disease – Guest Post Cat Case

  1. Secondary lactose intolerance can occur after a bout of intestinal flu, if you have disorders that affect the intestine such as irritable bowel syndrome or if you’ve had stomach surgery. Bowel damage from severe liver disease could cause lactose intolerance.

  2. In rare cases, newborns are lactose-intolerant. Symptoms in newborns include severe foamy diarrhea, diaper rash, vomiting, dehydration , weakness and irritability, and slow weight gain .

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