2013 in one word “BROKEN”

After such a whirlwind 2012 with meeting Oprah Winfrey, hosting a successful Jamie Oliver Food Day Revolution, Starting Ignite Health No one could have prepared me for the reality that 2o13 would knock me down and keep kicking at me.

January 2nd my daughter who has already faced more than any child should have to with health issues fell down 12 stairs. She broke her 4th toe on her left foot. Sounded simple enough but here we are April 8 and that toe has not healed and we are going back to the Orthapedic surgeon on Friday. At our last appointment in March the surgeon looked at Megan’s xray in shock. Turned to us and said I have never had to operate on a toe before. Megan’s body doesn’t heal. I know this intutively but can’t seem to get any doctor to look beyond their area of expertise to the bigger issue below the surface.

Since January 2nd I have been taking care of Megan’s needs for showering, for all meals delivered upstairs before I leave for work. Also Toby my 2 year old labradoodle has had to count on me for all care. In that regard I took him to the Dog park on Good Friday. He had a blast there was water in the pond and he was soaking wet. I decided after an hour that was enough and i needed to get him out of there before he got any wetter! Toby is a very rambunctious! He is enthusiastic and still ALL PUPPY! I got him on his leash with the promise of a treat. He was fighting me as i had to drag him out of the dog park. I thought we were through the worst of that and all of a sudden out of my periphreal vision I notice an arm being raised. Toby noticed it too. I felt him tense and all of a sudden he pulled…..I went with him and landed very hard on my chest on Left side.

I now have a broken rib and a bruised kidney to add to the complications of taking care of Megan. I am learning how to do laundry, cook, sleep on my back , how to drive to my job, how not to stretch, laugh, cough, sneeze!

I ponder if God is laughing again, or if he is sending me a message that I still don’t have priorities right? I have a good sense of humour and it helps a lot.

I will be starting therapy on April 12 officially. I need help to understand why I keep beating myself up, picking at my skin, and I send up my white Flag!

I need help to understand what I am doing right and what I need to change, what survival techniques from my childhood are helping me and which ones need to be removed.

We are broken and we are trying to get up!

Depression and a New Focus

I have been depressed. Absolutely without a doubt It started a few weeks ago when we learned that Megan’s foot is not healing and continued as I realized that in order to face the rest of 2013 I will have to back out of my passions in 2012.

My intentions with Jamie Oliver Food Revolution was to spread the word about eating whole foods and making sure our kids are healthier in the future by stopping the craziness now!

I got asked to become a volunteer in April 2012 and I accepted that challenge with excitement, I focussed a ton of my energy and support into creating a wonderful event in May 2012, I got lots of media coverage and the event was an amazing success.

My intentions with Ignite Health Ontario was to take the food revolution a step further and focus on the whole body experience, we need mental balance, spiritual balance, exercise, we need to eat balanced. Any of these factors being out of balance can cause illness and we always need to remember that.

I was inspired by Ignite London and additionally the creation of Ignite Culture where a full night of topics was related to arts and culture. If that could be done why couldn’t we create a night of health related topics. I was geared up and excited. I shared the idea in an ignite london talk and I had a number of great people come to me afte that to tell me to get in touch with them about this event.

We ran this event in October 2012 and it was a great success. I am very proud of both of these events and the work I did for them.

What I stopped paying attention too was the fact it was impacting my own stress levels, my ability to focus on work and now that we have no way to predict when Megan will be able to walk again I have to raise my hands and scream UNCLE!!

I decided that I need to shelve or back out of both Ignite Health Ontario and the Jamie Oliver food revolution for at least 2013. Making that decision broke my heart I am dousing the flames of passion with my tears. So over the last 3 -4 weeks I have been sleeping a ton, I have had a number of migraines and flus hit me. My Chronic Skin picking (dermatilomania) is at a level that I am struggling to get back under some control.

I have open sores on my arms. hands, chest, face and scalp. They are sore and begging me to stop. I am having so much anxiety around what I do with my life now. How do I translate that passion to taking care of my own health needs when I have never taken care of myself. Where do I start? How do I learn at 44 how to love myself when my entire life has been focussed on helping others. How do I get passionate about work again. There are quiet times that I need to fill with projects and I need to get excited about that and just do it. How do I keep the man beside me who has come into my life as a blessing and I can barely see with the challenges of working full time and being full time caretaker to Megan and the dog too.
I have been crying a ton and finally hit my breaking point last week . I made a doctors appointment to get Megan some more Tylenol 3 for pain and at the same time I asked to have my antidepressant Effexor increased from 75 MG to 150 MG.

I do feel lighter in my thoughts, I am not crying as frequently and do not feel as emotionally lost. I am now having insomnia instead of sleeping too much, I am having cold sweats but I assume thats related to upping my dose of Effexor and it won’t last long.

I have decided that I will focus on work, my health, my daughter, my boyfriend and I will refocus some of my energy to provide direction to Fatty Liver Disease support again. There are some demons that I will need to address in some counselling sessions and its time I took that step to take care of myself again.

I am not out of the woods but I will not hide the fact that yes I am dealing with depression again. I am also taking steps to fight back against its control on me. So 2013 will look very different for me but I hope to have some positive news for you all soon.

Hugs

Michelle

Guest Post – Heather Von St. James – Wife and Survivor of Mesothelioma

Heather asked if I could share her story and I am more than happy to!!

Heather Von St. James
Courageous Mother, Wife and Survivor of Mesothelioma

“Courage is resistance to fear, mastery of fear, not absence of fear.”
-Mark Twain

I hear it often from people, how brave I am and how much courage I have. Sometimes I just have to laugh, because, going through what I’ve been through with my mesothelioma battle, I don’t feel very brave. At times, the fear was so overwhelming, all I could do was cry out to God to help me. I would love to say that through the last 7 years, I’ve learned to conquer my fears. After all, Lungleavin Day, our celebration of the anniversary of my extrapleural pneumonectomy surgery, is all about overcoming fears. But I still have my moments, more often than I would like to admit. I have the usual fears creep in, my “scanxiety” I’ve blogged about before, little pangs of fear before I fly, but the biggest fear I struggle with is the fear of something happening to my daughter. This is something that has plagued me since she was born.

I’ve always had what I jokingly call puke-aphobia and, with having a kid, you know it something you have to deal with. This year has been particularly brutal on the gastroenteritis front for my poor Lily. Three times she has been sick this year in as many months. When she got sick the third time, the fear reared its ugly head in a big bad way. So much that I took her to the doctor and insisted he do a battery of tests to rule out anything. The thing I was most afraid of? Yep, cancer. Having dealt with cancer myself, and knowing so many others, my hypochondriac mind went right to the worst-case scenario. My husband, bless his heart, is always able to bring me back around to reasonable thinking. Although he understands why I go to the worst-case scenario, he doesn’t indulge it, and his voice of sound reason helps so much to calm me. Except in this case. I could not shake the feeling that something was seriously wrong. Turns out he was right. She is a perfectly healthy 7-year-old little girl. Every single test came back as normal as normal as could be and, for some reason, she has just gotten sick a lot this year.

The fear is crippling. The anxiety it causes makes my life miserable and those around me even more so. It is something that I have vowed to work on this year to not let the fear get out of control. Someone told me once that the word “FEAR” is an acronym for “False Evidence Appearing Real”, and when you think about it? It is TRUE!! The fear is almost always worse than what I’ve imagined and blown out of proportion in my mind. I did something this time that was not easy for me to do. I asked for help from people who I trust and admire, and their guidance and prayer really helped me overcome this obstacle. They gave me some tools to use to stop the cycle and basically send that fear packing. Frankly, God is the one who gives me tremendous peace. I find that prayer and reading His word, writing scriptures that speak to me, and keeping them in a little notebook for my use is a way for me to keep grounded.

With Lungleavin Day coming up, the opportunity is here to write our fears on a plate and smash them into the fire, I’m going to once again take control of my emotions and overcome. I know I have the power to do it; sometimes it is just making the choice to do so.

I hope you too will do something on February 2nd to overcome your fears in the spirit of Lungleavin Day. If breaking a plate is over the top, I find that a paper plate works great, and burning it, or tearing it into hundreds of pieces. If you struggle with fear, no matter what it is, taking control, finding the root of it, and addressing it helps takes it away. I also find humor is a great way to conquer fear, hence “LUNGLEAVIN DAY” It was born out of the desire to make something funny out of something tragic. It is the day my lung left my body.

For this, my 7th Annual Lungleavin Day, I’m conquering fear by surrounding myself with amazing people and sharing our night with anyone who wants to join in. I hope you can join us. Go to my Facebook fan page to join the Lungleavin Day Event and we will be live webcasting on the night of February 2nd, 2013 6:00 pm to whenever the last plate is broken (Central time).

I hope you, too, find something healing about the day just like we do. Together, we will make 2013 fabulous.

Read more: http://www.mesothelioma.com/blog/authors/heather/fear.htm#ixzz2J0nHx1ru

Tears lots and lots of Tears!

Well since my last post where I told you all that I was taking some time for myself after determining that I had built a solid brick wall around my heart has been very interesting indeed.

Since November I have cried enough tears to fill a bathtub! I have salt stains on my face that will likely stick around for a while!  I cry about memories, I cry due to happiness, I cry for lost moments that should have happened.  When I am driving I find that songs will remind me of the man I am proud to call my boyfriend, best friend and the sweetest kindest man i have ever known. That will create tears of happiness and gratitude in my heart. I will share more about him another time. Suffice to say I am very happy.

I hear other songs and I will think about my kids and burst into tears. The nostalgia for christmas long ago when Alex used to cry on Christmas Eve because he couldn’t fall asleep and he was so worried and anxious that he was ruining christmas for every child in the world. I would read to him for hours and I would try so hard to calm him down. It took hours and that little boy truly was carrying the weight of the world in his heart. He is now 19 and I don’t think he had any trouble falling asleep christmas eve. But I would have been ready to cuddle him and settle him until he could fall asleep if he ever needs that again! Those tears are for days gone by and moments that I know will never be repeated but will always be in my heart.

Tears for the little abused girl that i was  have come too. I was such a strong smart friendly child and the world around me tried its hardest to squash me and destroy me. But my soul was stronger than that and I am so proud to say that no one in my life has ever had the power to destroy my inner strength and I can say with conviction. No one EVER will!

 

I cried when Toby chased snowflakes last night..just a couple tears but to see his joy and playfulness with something so basic reminds me why puppies and little children will always be my favorite things.

My Children both bought me gifts this year that absolutely mean the world to me.  Alex picked out a homemade scarf for me with all my favorite colours reflected in it! I adore it! Megan got me a really cute picture book with photo’s of dogs taken under water! Its amazing! She also got me a wonderful Sherpa Blanket that has been my best friend while I have been sick!

UnderWater Dogs!

Underwater Dogs from Megan! Great Book!

 

 

Sherpa Blanket from Megan!

Sherpa Blanket from Megan!

Alex's gift to me

Alex’s gift to me

So to say that my tear ducts are running on empty moving into 2013 should be a true statement. I have cried for everything and I now know I am ready to face 2013 and make it my best year ever! If you thought the events I created in 2012 for the Jamie Oliver Food Revolution and Ignite Health Ontario were special… You just wait to see what I create next May!!